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Health‐related quality of life and fear of progression in individuals with Li‐Fraumeni syndrome

13 Feb 2024

Abstract excerpt

Li-Fraumeni syndrome (LFS) is a rare autosomal dominant cancer predisposition syndrome associated with a highly elevated lifetime cancer risk. This and the recommended intense surveillance program represent a large psychological burden on families. In order to develop targeted psychosocial interventions, we conducted a needs assessment. Adults (≥18 years) with LFS were included via regular hospital visits and...

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PMID: 38348940
DOI: 10.1002/jgc4.1859

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