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Couples coping with screening burden and diagnostic uncertainty in Li-Fraumeni syndrome: Connection versus independence

28 Dec 2018

Abstract excerpt

PURPOSE: Li-Fraumeni Syndrome (LFS) is an inherited tumor predisposition syndrome with lifetime cancer risks approaching 100% and evolving risk-management strategies. This study evaluated couples' coping with LFS-related burdens. RESEARCH APPROACH: Constructivist grounded theory and anticipatory loss frameworks guided design and analysis. SAMPLE AND METHODS: Twenty-six individuals enrolled in the NCI LFS Family...

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Identifiers

PMID: 30591002
DOI: 10.1080/07347332.2018.1543376

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