Article
The psychosocial effects of the Li-Fraumeni Education and Early Detection (LEAD) program on individuals with Li-Fraumeni syndrome.
Genetics in medicine : official journal of the American College of Medical Genetics - 1 Sept 2017
Ross Jessica, Bojadzieva Jasmina, Peterson Susan, Noblin Sarah Jane, Yzquierdo Rebecca, Askins Martha, Strong Louise
Abstract excerpt
PURPOSE: In the past 5 years, new screening protocols have been developed that provide improved cancer screening options for individuals with Li-Fraumeni syndrome (LFS). Very little has been published on the psychosocial impact of these screening protocols. The goals of this study were to determine how participation in screening impacts individuals psychosocially, to examine the benefits and drawbacks of...
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