Article
Distress in partners of individuals diagnosed with or at high risk of developing tumors due to rare hereditary cancer syndromes.
Psycho-oncology - 1 Jun 2011
Lammens C R M, Bleiker E M A, Verhoef S, Ausems M G E M, Majoor-Krakauer D, Sijmons R H, Hes F J, Gómez-García E B, Van Os T A M, Spruijt L, van der Luijt R B, van den Ouweland A M W, Ruijs M W G, Gundy C, Nagtegaal T, Aaronson N K
Abstract excerpt
OBJECTIVE: Li Fraumeni syndrome (LFS) and Von Hippel-Lindau disease (VHL) are two rare hereditary tumor syndromes, characterized by a high risk of developing multiple tumors at various sites and ages for which preventive and treatment options are limited. For partners, it may be difficult to deal with the on-going threat of tumors in both their spouse and children. Therefore, this study aims to evaluate the...
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