Article
How do young people with a hereditary cancer predisposition syndrome understand and experience cancer survivorship? "With Li-Fraumeni syndrome, it's just an intermission".
Psycho-oncology - 1 Mar 2023
Werner-Lin Allison, Forbes Shepherd Rowan, Rising Camella J, Thompson Ashley S, Huelsnitz Chloe, Wilsnack Catherine, Boyd Patrick, Sleight Alix G, Hutson Sadie, Khincha Payal P
Abstract excerpt
OBJECTIVES: Adolescents and young adult (AYA) cancer survivors face unique medical and psychosocial sequalae, including chronic health conditions, late effects of treatment and fear of recurrence. The meaning of cancer survivorship may be further complicated for AYAs with hereditary cancer predisposition syndromes. This study used a patient-centered framework to investigate how AYAs with Li-Fraumeni syndrome...
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