Article
A randomized controlled trial of disclosing genetic risk information for Alzheimer disease via telephone.
Genetics in medicine : official journal of the American College of Medical Genetics - 1 Jan 2018
Christensen Kurt D, Uhlmann Wendy R, Roberts J Scott, Linnenbringer Erin, Whitehouse Peter J, Royal Charmaine D M, Obisesan Thomas O, Cupples L Adrienne, Butson Melissa B, Fasaye Grace-Ann, Hiraki Susan, Chen Clara A, Siebert Uwe, Cook-Deegan Robert, Green Robert C
Abstract excerpt
PurposeTelephone disclosure of genetic test results can improve access to services. To date, studies of its impact have focused on return of Mendelian risk information, principally hereditary cancer syndromes.MethodsIn a multisite trial of Alzheimer disease genetic risk disclosure, asymptomatic adults were randomized to receive test results in person or via telephone. Primary analyses examined patient outcomes 12...
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