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Article

Preferences for the Return of Individual Results From Research on Pediatric Biobank Samples.

Journal of empirical research on human research ethics : JERHRE - 1 Apr 2017

Christensen Kurt D, Savage Sarah K, Huntington Noelle L, Weitzman Elissa R, Ziniel Sonja I, Bacon Phoebe L, Cacioppo Cara N, Green Robert C, Holm Ingrid A

Abstract excerpt

Discussions about disclosing individual genetic research results include calls to consider participants' preferences. In this study, parents of Boston Children's Hospital patients set preferences for disclosure based on disease preventability and severity, and could exclude mental health, developmental, childhood degenerative, and adult-onset disorders. Participants reviewed hypothetical reports and reset...

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Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

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Source

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Identifiers

PMID: 28421887
DOI: 10.1177/1556264617697839
PMCID: PMC5407299

Provenance

PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 6 Sept 2026. Manifest publication-graph-cohort-2026-09-06.1.

Source receipt: pubmed, retrieved 6 Sept 2026.

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