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Article

Biobank participants' preferences for disclosure of genetic research results: perspectives from the OurGenes, OurHealth, OurCommunity project.

Mayo Clinic proceedings - 1 Jun 2014

Allen Nicole L, Karlson Elizabeth W, Malspeis Susan, Lu Bing, Seidman Christine E, Lehmann Lisa Soleymani

Abstract excerpt

OBJECTIVE: To assess biobank participants' preferences for disclosure of genetic research results. PATIENTS AND METHODS: We conducted a cross-sectional survey of participants in the OurGenes, OurHealth, OurCommunity biobank. Respondents were surveyed about preferences for disclosure, importance of disclosure, communication of results with practitioners, and sharing of results after respondents' death....

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Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

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Identifiers

PMID: 24943692
DOI: 10.1016/j.mayocp.2014.03.015
PMCID: PMC4148696

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PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 7 Sept 2026. Manifest publication-graph-cohort-2026-09-07.1.

Source receipt: pubmed, retrieved 7 Sept 2026.

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