Article
Adolescent and Parental Attitudes About Return of Genomic Research Results: Focus Group Findings Regarding Decisional Preferences.
Journal of empirical research on human research ethics : JERHRE - 1 Oct 2018
McGowan Michelle L, Prows Cynthia A, DeJonckheere Melissa, Brinkman William B, Vaughn Lisa, Myers Melanie F
Abstract excerpt
Opportunities to participate in genomic sequencing studies, as well as recommendations to screen for variants in 59 medically actionable genes anytime clinical genomic sequencing is performed, indicate adolescents will increasingly be involved in decisions about learning secondary findings from genome sequencing. However, how adolescents want to be involved in such decisions is unknown. We conducted five focus...
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