Discover Community Create You

Loading publication...

Noodle always counts identifier-free feature events for service operation. With your permission, Google Analytics can also estimate audience and engagement. Search text, publication identifiers, cookies, IP addresses and browser fingerprints are never included in Noodle's first-party event counters.

Privacy details

Article

What Research Participants Want to Know About Genetic Research Results: The Impact of “Genetic Exceptionalism”

1 Sept 2011

Abstract excerpt

The disclosure of individual genetic results has generated an ongoing debate about which rules should be followed. We aimed to identify factors related to research participants' preferences about learning the results of genomic studies using their donated tissue samples. We conducted a cross-sectional survey of 279 patients from the United States and Spain who had volunteered to donate a sample for genomic...

Read the complete abstract on PubMed

Topics

Share this publication in a Topic to start or enrich a Post.

Share to Biomedical Ethics and Regulation
Share to BRCA gene mutations in cancer
Share to Ethics in Clinical Research

Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

Source

Identifiers

PMID: 21931236
DOI: 10.1525/jer.2011.6.3.39

Provenance

PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 7 Sept 2026.

Related research

Semantic proximity does not establish scientific evidence.

Research trail→

Click a neighbor to travelStep 1 · 12 closest

What Research Participants Want to Know About Genetic Research Results: The Impact of “Genetic Exceptionalism”PMID 21931236Read ↗

Willingness to donate genomic and other medical data: results from GermanySemantic proximity Read ↗

Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic dataSemantic proximity Read ↗

Research Participants’ Preferences for Hypothetical Secondary Results from Genomic ResearchSemantic proximity Read ↗

Biobank participants' preferences for disclosure of genetic research results: perspectives from the OurGenes, OurHealth, OurCommunity project.Semantic proximity Read ↗

Not all information is equally important: informed consent to genetic testing for hereditary cancer.Semantic proximity Read ↗

The development of a preference-setting model for the return of individual genomic research results.Semantic proximity Read ↗

A Closer Look at the Recommended Criteria for Disclosing Genetic Results: Perspectives of Medical Genetic Specialists, Genomic Researchers, and Institutional Review Board ChairsSemantic proximity Read ↗

To disclose, or not to disclose? Perspectives of clinical genomics professionals toward returning incidental findings from genomic researchSemantic proximity Read ↗

Preferences of Italian patients for return of secondary findings from clinical genome/exome sequencingSemantic proximity Read ↗

Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?Semantic proximity Read ↗

Differences in attitudes toward genetic testing among the public, patients, and health-care professionals in Korea.Semantic proximity Read ↗

Expression of preference for the disclosure of secondary findings of comprehensive genomic profiling tests by cancer patients and relativesSemantic proximity Read ↗

⌁Select a neighboring publication to make it the new centre.