Article

Engaging Adolescents and Young Adults in Decisions About Return of Genomic Research Results: a mixed-methods longitudinal clinical trial protocol

2023-04-27

Abstract excerpt

<h4>Background: </h4> To protect minors’ future autonomy, professional organizations have historically discouraged returning predictive adult-onset genetic test results and carrier status to children. Recent clinical guidance diverges from this norm, suggesting that when minors have genomic sequencing performed for clinical purposes, parents and children should have the opportunity to learn secondary findings, inc...

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Literature Corpus work: 56752333-07e1-5544-9788-70acd5a465be
DOI: 10.21203/rs.3.rs-2819191/v1

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