Article

Policy and process for returning raw genomic data to parents and young adult participants in a pediatric cancer precision medicine trial.

2024-06-12

Abstract excerpt

<title>Abstract</title> <p>Sharing raw genomic data with research participants is not universally mandated. Yet, in padiatric cancer precision medicine clinical trials settings, parents proactively seeking treatment and answers to causation may request return of their child’s raw data and/or biospecimen. To satisfy such requests with ethical, timely and appropriate responses, the ZERO Childhood Cancer Program req...

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Literature Corpus work: 4dd34b22-8929-507e-aa94-a51da92a7a92
DOI: 10.21203/rs.3.rs-4356870/v1

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