Article
Freedom of Choice About Incidental Findings Can Frustrate Participants' True Preferences.
Bioethics - 1 Mar 2016
Viberg Jennifer, Segerdahl Pär, Langenskiöld Sophie, Hansson Mats G
Abstract excerpt
Ethicists, regulators and researchers have struggled with the question of whether incidental findings in genomics studies should be disclosed to participants. In the ethical debate, a general consensus is that disclosed information should benefit participants. However, there is no agreement that genetic information will benefit participants, rather it may cause problems such as anxiety. One could get past this...
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