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Perspectives of Italian lay persons who would decline genetic risk information: "I think I'd be living in constant worry".

Journal of genetic counseling - 1 Dec 2025

Godino Lea, Battistuzzi Linda, Varesco Liliana, Turchetti Daniela, Gentili Vanessa, Chiari Paolo, Palese Alvisa

Abstract excerpt

This study explores lay public perspectives on intrafamilial genetic risk communication, focusing on individuals who hypothetically choose not to receive genetic information, a largely overlooked population in genetic counseling research. A nested cross-sectional online survey combining both closed- and open-ended questions was used. Quantitative data included sociodemographic characteristics, family functioning...

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PMID: 41217024
DOI: 10.1002/jgc4.70126

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