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Article

Research participants in NGS studies want to know about incidental findings.

European journal of human genetics : EJHG - 1 Oct 2015

Jelsig Anne Marie, Qvist Niels, Brusgaard Klaus, Ousager Lilian Bomme

Abstract excerpt

Following the implementation of high-throughput sequencing legal and ethical issues are discussed intensively. The management of incidental findings (IFs) in a research setting have been investigated but there is a lack of literature concerning research participant's perspective. The aim of this study was to investigate whether research participants want disclosure of IFs and what kind of IFs they want to know...

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Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

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Identifiers

PMID: 25604854
DOI: 10.1038/ejhg.2014.298
PMCID: PMC4592091

Provenance

PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 7 Sept 2026. Manifest publication-graph-cohort-2026-09-07.1.

Source receipt: pubmed, retrieved 7 Sept 2026.

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