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Article

A genetic researcher's devil's dilemma: Warn relatives about their genetic risk or respect confidentiality agreements with research participants?

BMC medical ethics - 23 Nov 2021

van den Heuvel Lieke M, Maeckelberghe Els L M, Ploem M Corrette, Christiaans Imke

Abstract excerpt

BACKGROUND: With advances in sequencing technologies, increasing numbers of people are being informed about a genetic disease identified in their family. In current practice, probands (the first person in a family in whom a genetic predisposition is identified) are asked to inform at-risk relatives about the diagnosis. However, previous research has shown that relatives are sometimes not informed due to barriers...

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Identifiers

PMID: 34814911
DOI: 10.1186/s12910-021-00721-4
PMCID: PMC8609755

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