Article

Re-Consent Practices in Biobanks in Japan: Current Status and Stakeholder Perspectives

2025-04-30

Abstract excerpt

<title>Abstract</title> <p>Pediatric research in rare diseases relies on sharing biological specimens, clinical data, and analytical information among researchers. Re-consent is essential in longitudinal biobank (BB) research to ensure that pediatric participants remain informed and willing to continue. However, the issue of re-consent—obtaining consent once as participants reach adulthood—remains a significant e...

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Literature Corpus work: b6a74755-cf2b-5541-a98a-8fa3faf199b4
DOI: 10.21203/rs.3.rs-6324379/v1

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