Article
Should Genetic Testing be Offered for Children? The Perspectives of Adolescents and Emerging Adults in Families with Li-Fraumeni Syndrome.
Journal of genetic counseling - 1 Oct 2017
Alderfer Melissa A, Lindell Robert B, Viadro Claire I, Zelley Kristin, Valdez Jessica, Mandrell Belinda, Ford Carol A, Nichols Kim E
Abstract excerpt
Whether children should be offered genetic testing for cancer risk is much debated but young voices are rarely heard in these conversations. The current study explored perspectives of genetic testing held by adolescents and emerging adults in families with Li Fraumeni syndrome (LFS). Twelve 12- to 25-year-olds in families with LFS completed qualitative interviews for this study. All believed that testing should...
Read the complete abstract on PubMedTopics
Share this publication in a Topic to start or enrich a Post.
