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Article

Attitudes Toward Return of Genetic Research Results to Relatives, Including After Death: Comparison of Cancer Probands, Blood Relatives, and Spouse/Partners.

Journal of empirical research on human research ethics : JERHRE - 1 Jul 2018

Radecki Breitkopf Carmen, Wolf Susan M, Chaffee Kari G, Robinson Marguerite E, Lindor Noralane M, Gordon Deborah R, Koenig Barbara A, Petersen Gloria M

Abstract excerpt

Genetic research generates results with implications for relatives. Recommendations addressing relatives' access to a participant's genetic research findings include eliciting participant preferences about access and choosing a representative to make decisions about access upon participant incapacity/death. Representatives are likely to be blood relatives or spouse/partners (who may share genetically related...

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Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

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Identifiers

PMID: 29701109
DOI: 10.1177/1556264618769165
PMCID: PMC5993615

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PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 7 Sept 2026. Manifest publication-graph-cohort-2026-09-08.1.

Source receipt: pubmed, retrieved 7 Sept 2026.

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