Research participant perceptions of personal utility in disclosure of individual research results from genomic analysis

Abstract excerpt

<title>Abstract</title> <p>This article elaborates research participant perspectives on the communication of individual research results from genomic analyses. While most analyses focus on how to communicate results from the perspectives of clinicians or researchers, there is insufficient data on user perspectives and how this information may be used, valued, and interpreted by patients and their families. The co...

Topics

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• Biological Specimen Banks
• BRCA gene mutations in cancer
• Comprehension
• Decision Making
• Disclosure
• Ethics in Clinical Research
• Informed Consent
• Models, Psychological

Identifiers and source

Literature Corpus work

7c87267f-7d7f-5370-a717-a0b348aaae51

DOI

10.21203/rs.3.rs-4016798/v1