Article

“Would you want to know?” Questions of utility and responsibility in Italian laypersons’ preferences about genetic risk communication

2025-06-17

Abstract excerpt

<title>Abstract</title> <p>We surveyed the preferences of Italian laypersons (n = 609) regarding the communication of genetic risk information to and within families, presenting scenarios about three genetic conditions (Cystic Fibrosis, CF; Hereditary Cancer, HC; and early-onset Alzheimer’s disease, AD). We found that almost all of the participants (565/609, 93%) were interested in receiving genetic risk informat...

Topics

Open a Topic to create a Post that cites this publication.

Identifiers and source

Literature Corpus work: c5ca8cbd-6fa5-57a1-bebd-28fca8212f96
DOI: 10.21203/rs.3.rs-6827218/v1

Open publication

Related research

Semantic proximity does not establish scientific evidence.

Click a neighbor to travelStep 1 · 12 closest

“Would you want to know?” Questions of utility and responsibility in Italian laypersons’ preferences about genetic risk communicationDOI 10.21203/rs.3.rs-6827218/v1Read

Perspectives of Italian lay persons who would decline genetic risk information: "I think I'd be living in constant worry".Semantic proximity Read

Learning about the genetic risk in my family: preferences of Italian nursesSemantic proximity Read

Public perspectives on healthcare professional-directed communication of hereditary genetic risks: a mixed-method systematic review.Semantic proximity Read

Predictive genetic testing, risk communication, and risk perception: an international expert meeting in Berlin, GermanySemantic proximity Read

How to inform at-risk relatives? Attitudes of 1379 Dutch patients, relatives, and members of the general population.Semantic proximity Read

Preferences of Italian patients for return of secondary findings from clinical genome/exome sequencingSemantic proximity Read

Who has the responsibility to inform relatives at risk of hereditary cancer? A population-based survey in Sweden.Semantic proximity Read

Intrafamilial communication of hereditary breast and ovarian cancer genetic information in Italian women: towards a personalised approach.Semantic proximity Read

Decision-making about inherited cancer risk: exploring dimensions of genetic responsibility.Semantic proximity Read

What Research Participants Want to Know About Genetic Research Results: The Impact of “Genetic Exceptionalism”Semantic proximity Read

Cascade genetic testing in hereditary cancer: exploring the boundaries of the Italian legal framework.Semantic proximity Read

Genetic testing for hereditary cancer syndromes: patient recommendations for improved risk communication.Semantic proximity Read