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Article

How to inform at-risk relatives? Attitudes of 1379 Dutch patients, relatives, and members of the general population.

Journal of genetic counseling - 1 Oct 2020

Marleen van den Heuvel Lieke, Stemkens Daphne, van Zelst-Stams Wendy A G, Willeboordse Floor, Christiaans Imke

Abstract excerpt

The uptake of predictive DNA testing in families with a hereditary disease is <50%. Current practice often relies on the proband to inform relatives about the possibility of predictive DNA testing, but not all relatives are informed adequately. To enable informed decision-making concerning predictive DNA testing, the approach used to inform at-risk relatives needs to be optimized. This study investigated the...

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Identifiers

PMID: 31889383
DOI: 10.1002/jgc4.1206
PMCID: PMC7649718

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PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 7 Sept 2026. Manifest publication-graph-cohort-2026-09-08.1.

Source receipt: pubmed, retrieved 7 Sept 2026.

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