Adolescents’ preferences regarding disclosure of incidental findings in genomic sequencing that are not medically actionable in childhood

Abstract excerpt

Next-generation sequencing has challenged the consensus that predictive testing should not be performed on asymptomatic minors for conditions that are not medically actionable in childhood. While the available literature suggests that most parents want access to incidental findings discovered in genomic sequencing, there is little information regarding adolescents' views. This study's goal is to determine...

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