Back to search

Article

“Quality of Life in Epidermolysis Bullosa” and “Epidermolysis Bullosa Burden of Disease”: Italian translation, cultural adaptation, and pilot testing of two disease-specific questionnaires

2024-02-06

Abstract excerpt

<title>Abstract</title> <p>Background Inherited epidermolysis bullosa (EB) is a clinically and genetically heterogeneous group of skin fragility disorders characterized by blister formation following minor trauma. Four major types are distinguished based on the level of cleavage within the skin. Most EB forms present severely disabling cutaneous and systemic signs and symptoms. Management relies on daily time-co...

Topics

Open a Topic to create a Post that cites this publication.

Identifiers and source

Literature Corpus work
0af4bc35-23b5-5335-a15c-eec842aced34
DOI
10.21203/rs.3.rs-3907631/v1
Open publication

Related research

Semantic proximity does not establish scientific evidence.

Click a neighbor to travelStep 1 · 12 closest
Interactive article relationship graphSelect a related publication card to move it into the centre and load its closest explainable connections. Solid lines are source-backed structured connections. Dashed lines are semantic discovery signals and are not scientific evidence.
“Quality of Life in Epidermolysis Bullosa” and “Epidermolysis Bullosa Burden of Disease”: Italian translation, cultural adaptation, and pilot testing of two disease-specific questionnairesDOI 10.21203/rs.3.rs-3907631/v1
Living with dystrophic epidermolysis bullosa in Poland: first national study of health-related quality of life and symptom burdenSemantic proximity
Recent advances in understanding and managing epidermolysis bullosaSemantic proximity
Health Challenges in Patients with Epidermolysis bullosa: a cross-sectional studySemantic proximity
Pain in recessive dystrophic epidermolysis bullosa (RDEB): findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES)Semantic proximity
Economic burden and health-related quality of life in patients with epidermolysis bullosa in SpainSemantic proximity
Inherited epidermolysis bullosa: updated recommendations on diagnosis and classification.Semantic proximity
Are existing validated severity scores for epidermolysis bullosa reflective of the burden of disease in patients with epidermolysis bullosa simplex?Semantic proximity
Epidermolysis Bullosa. Clinical, Epidemiologic, and Laboratory Advances and the Findings of the National Epidermolysis Bullosa RegistrySemantic proximity
A Multicenter Study On Quality Of Life of The “Greater Patient” In Congenital IchthyosesSemantic proximity
Skin Fragility: Perspectives on Evidence-based Therapies.Semantic proximity
Current topics in Epidermolysis bullosa: Pathophysiology and therapeutic challenges.Semantic proximity
Quality of Life in Acral Peeling Skin Syndrome: A Cohort StudySemantic proximity
Select a neighboring publication to make it the new centre.