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Pain in recessive dystrophic epidermolysis bullosa (RDEB): findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES)

2024-05-02

Abstract excerpt

<title>Abstract</title> <p><italic>Background</italic> Pain is common in the genetic skin fragility disorder epidermolysis bullosa (EB), from skin and mucosal injury and inflammation as well as extra-mucocutaneous sites. Individuals living with EB have identified pain as a priority for better treatments. <italic>Objectives</italic> The Prospective EB Longitudinal Evaluation Study (PEBLES) is a prospective registe...

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Literature Corpus work
07798289-e74a-590b-a6fa-80c2bb69da8a
DOI
10.21203/rs.3.rs-4087072/v1
Open publication

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Pain in recessive dystrophic epidermolysis bullosa (RDEB): findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES)DOI 10.21203/rs.3.rs-4087072/v1
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