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Economic burden and health-related quality of life in patients with epidermolysis bullosa in Spain

23 Sept 2024

Abstract excerpt

BACKGROUND: . Epidermolysis bullosa (EB) is a rare genetic skin disorder characterized by fragility of skin with appearance of acute and chronic wounds. The aim of this study was to determine the economic burden and the health-related quality of life (HRQoL) of patients with epidermolysis bullosa (EB) in Spain from a societal perspective. METHODS: . We conducted a cross-sectional, retrospective study including 62...

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PMID: 39313783
DOI: 10.1186/s13023-024-03328-1

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