Article
The ethics conundrum in Recall by Genotype (RbG) research: Perspectives from birth cohort participants.
PloS one - 1 Jan 2018
Minion Joel T, Butcher Frances, Timpson Nicholas, Murtagh Madeleine J
Abstract excerpt
PURPOSE: Recall by genotype (RbG) research recruits on the basis of genetic variation. Increased use of this approach presents an ethical conundrum for cohort studies/biobanks: whether to inform individuals of their genetic information and deviate from standard practice of non-disclosure of results, or mask this information at the level of the individual participant. This paper examines the perspectives of...
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