Article
Am I a control?: Genotype-driven research recruitment and self-understandings of study participants.
Genetics in medicine : official journal of the American College of Medical Genetics - 1 Dec 2012
Michie Marsha, Cadigan R Jean, Henderson Gail, Beskow Laura M
Abstract excerpt
PURPOSE: Genotype-driven research recruitment complicates traditional study roles and may leave those recruited worried about unwelcome surprises from their DNA. This study investigated the ways that individuals experience genotype-driven recruitment, and conceptualize their roles as research participants. METHODS: Individual interviews were conducted with the participants of a genotype-driven study on cystic...
Topics
- Adult
- Case-Control Studies
- Cystic Fibrosis
- Female
- Genotype
- Health Knowledge, Attitudes, Practice
- Healthy Volunteers
- Humans
- Male
- Middle Aged
- Patient Selection
- Research Subjects
- Self Concept
- Transforming Growth Factor beta1
- Young Adult