"Am I my genes?": Questions of identity among individuals confronting genetic disease.

Abstract excerpt

PURPOSE: : To explore many questions raised by genetics concerning personal identities that have not been fully investigated. METHODS: : We interviewed in depth, for 2 hours each, 64 individuals who had or were at risk for Huntington disease, breast cancer, or alpha-1 antitrypsin deficiency. RESULTS: : These individuals struggled with several difficult issues of identity. They drew on a range of genotypes and...

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