Article
"Am I my genes?": Questions of identity among individuals confronting genetic disease.
Genetics in medicine : official journal of the American College of Medical Genetics - 1 Dec 2009
Klitzman Robert
Abstract excerpt
PURPOSE: : To explore many questions raised by genetics concerning personal identities that have not been fully investigated. METHODS: : We interviewed in depth, for 2 hours each, 64 individuals who had or were at risk for Huntington disease, breast cancer, or alpha-1 antitrypsin deficiency. RESULTS: : These individuals struggled with several difficult issues of identity. They drew on a range of genotypes and...
Topics
- Attitude to Health
- Breast Neoplasms
- Female
- Genetic Predisposition to Disease
- Genetic Testing
- Genetics, Medical
- Genotype
- Humans
- Huntington Disease
- Interviews as Topic
- Male
- Mutation
- Patient Education as Topic
- Phenotype
- Physician-Patient Relations
- Risk Factors
- Self Concept
- alpha 1-Antitrypsin Deficiency