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Article

Perception, experience, and response to genetic discrimination in Huntington's disease: the Australian results of The International RESPOND-HD study.

Genetic testing and molecular biomarkers - 1 Feb 2013

Goh Anita M Y, Chiu Edmond, Yastrubetskaya Olga, Erwin Cheryl, Williams Janet K, Juhl Andrew R, Paulsen Jane S

Abstract excerpt

AIMS: This study examines elements of genetic discrimination among an at-risk, clinically undiagnosed Huntington's disease (HD) population. METHODS: Sixty at-risk individuals, either positive or negative for the HD genetic mutation, completed a survey regarding their experiences of genetic discrimination, adverse and unfair treatment, and knowledge about existing laws and policies surrounding genetic...

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Identifiers

PMID: 23289616
DOI: 10.1089/gtmb.2012.0288
PMCID: PMC3552166

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PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 7 Sept 2026. Manifest publication-graph-cohort-2026-09-08.1.

Source receipt: pubmed, retrieved 7 Sept 2026.

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