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Article

Views of Discrimination among Individuals Confronting Genetic Disease

6 Jan 2010

Abstract excerpt

Though the US passed the Genetic Information Non-Discrimination Act, many questions remain of how individuals confronting genetic disease view and experience possible discrimination. We interviewed, for 2 hours each, 64 individuals who had, or were at risk for, Huntington's Disease, breast cancer, or Alpha-1 antitrypsin deficiency. Discrimination can be implicit, indirect and subtle, rather than explicit, direct...

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Biomedical Ethics and Regulation
BRCA gene mutations in cancer
Health Systems, Economic Evaluations, Quality of Life

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Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

Identifiers

PMID: 20054623
DOI: 10.1007/s10897-009-9262-8

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