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Beyond the patient: the broader impact of genetic discrimination among individuals at risk of Huntington disease.

American journal of medical genetics. Part B, Neuropsychiatric genetics : the official publication of the International Society of Psychiatric Genetics - 1 Mar 2012

Bombard Yvonne, Palin JoAnne, Friedman Jan M, Veenstra Gerry, Creighton Susan, Bottorff Joan L, Hayden Michael R

Abstract excerpt

We aimed to address gaps in current understanding of the scope and impact of discrimination, by examining a cohort of individuals at-risk for Huntington disease (HD), to describe the prevalence of concern for oneself and one's family in multiple domains; strategies used to mitigate discrimination; and the extent to which concerns relate to experiences. We conducted a cross-sectional survey of 293 individuals...

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Cross-Sectional Studies
Genetic Testing
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Huntington Disease

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PMID: 22231990
DOI: 10.1002/ajmg.b.32016

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