Discover Community Create You

Loading publication...

Noodle always counts identifier-free feature events for service operation. With your permission, Google Analytics can also estimate audience and engagement. Search text, publication identifiers, cookies, IP addresses and browser fingerprints are never included in Noodle's first-party event counters.

Privacy details

Article

What's at stake? Genetic information from the perspective of people with epilepsy and their family members.

Social science & medicine (1982) - 1 Sept 2011

Shostak Sara, Zarhin Dana, Ottman Ruth

Abstract excerpt

Substantial progress has been made in identifying genes that raise risk for epilepsy, and genetic testing for some of these genes is increasingly being used in clinical practice. However, almost no empirical data are available from the perspective of people with epilepsy and their family members about the impact of genetic information and potential benefits and harms of genetic testing. To address this gap we...

Read the complete abstract on PubMed

Topics

Share this publication in a Topic to start or enrich a Post.

Share to Attitude to Health
Share to Epilepsy
Share to Family

Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

Share to Genetic Testing

Share to Health Knowledge, Attitudes, Practice

Share to Interviews as Topic

Share to United States

Share to Young Adult

Source

Open in PubMed Open full text

Identifiers

PMID: 21831495
DOI: 10.1016/j.socscimed.2011.06.043
PMCID: PMC3163050

Provenance

PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 3 Sept 2026.

Related research

Semantic proximity does not establish scientific evidence.

Research trail→

Click a neighbor to travelStep 1 · 12 closest

What's at stake? Genetic information from the perspective of people with epilepsy and their family members.PMID 21831495Read ↗

Ethical, legal, and social dimensions of epilepsy genetics.Semantic proximity Read ↗

"It's good to know": experiences of gene identification and result disclosure in familial epilepsies.Semantic proximity Read ↗

Reproductive decision-making in families containing multiple individuals with epilepsy.Semantic proximity Read ↗

Genetic risk perception and reproductive decision making among people with epilepsy.Semantic proximity Read ↗

The experience of "at-risk" status for familial frontotemporal dementia (fFTD) and its impact on reproductive decision-making: A qualitative study.Semantic proximity Read ↗

Ethical considerations in psychiatric genetics.Semantic proximity Read ↗

Genetic testing preferences in families containing multiple individuals with epilepsy.Semantic proximity Read ↗

Reasons for and against presymptomatic genetic testing in frontotemporal dementia: a qualitative study.Semantic proximity Read ↗

Can We Make Assumptions About the Psychosocial Impact of Living as a Carrier, Based on Studies Assessing the Effects of Carrier Testing?Semantic proximity Read ↗

Disclosing Genetic Test Results to Family MembersSemantic proximity Read ↗

Impact of presymptomatic genetic testing on young adults: a systematic review.Semantic proximity Read ↗

Personal Narratives of Genetic Testing: Expectations, Emotions, and Impact on Self and Family.Semantic proximity Read ↗

⌁Select a neighboring publication to make it the new centre.