Article
Impact of social stigma on the process of obtaining informed consent for genetic research on podoconiosis: a qualitative study.
BMC medical ethics - 22 Aug 2009
Tekola Fasil, Bull Susan, Farsides Bobbie, Newport Melanie J, Adeyemo Adebowale, Rotimi Charles N, Davey Gail
Abstract excerpt
BACKGROUND: The consent process for a genetic study is challenging when the research is conducted in a group stigmatized because of beliefs that the disease is familial. Podoconiosis, also known as 'mossy foot', is an example of such a disease. It is a condition resulting in swelling of the lower legs among people exposed to red clay soil. It is a very stigmatizing problem in endemic areas of Ethiopia because of...
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