Article

Understanding and participation in genetics research among Nigerian mothers of children with orofacial cleft: a qualitative study of prior genetic study participants

2026-08-25

Abstract excerpt

This study sought to identify strategies to increase the level of participation of orofacial cleft (OFC) caregivers in craniofacial genetics research as well as assess their understanding of genomics research and secondary findings (SF). This was a qualitative study. After obtaining informed consent, we conducted four focus groups with an average of 7 participants per group. The study participants (females) were 2...

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Literature Corpus work: 4959485a-d69f-5e97-aabe-e817e2f701ab
DOI: 10.1186/s12903-026-09285-4

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