Article
Qualitative research methodology in the exploration of patients' perceptions of participating in a genetic research program.
Ophthalmic genetics - 1 Sept 2007
Basson Frieda, Futter Merle Joyce, Greenberg Jacquie
Abstract excerpt
The success of genetic research studies depend on patients' willingness to participate. It is thus important to explore the attitudes of individuals that participate in such studies. This study used qualitative methods to explore how individuals with inherited retinal degenerative disorders (RDD) perceived participating in genetic research and subsequently receiving mutation results. Individual interviews were...
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