Article
Why do they do it? A pilot study towards understanding participant motivation and experience in a large genetic epidemiological study of endometriosis.
Community genetics - 1 Jan 2007
Treloar Susan A, Morley Katherine I, Taylor Sandra D, Hall Wayne D
Abstract excerpt
OBJECTIVE: This exploratory, pilot study aimed to investigate motivations and reflections of participants who had provided epidemiological information, blood samples and access to clinical records and data in a large genetic epidemiological study of endometriosis, a common multifactorial disorder affecting women. We also aimed to explore understanding of complex genetic or multifactorial conditions in general....
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