Article

Social difficulties and costs/burden of adult Duchenne muscular dystrophy in Japan: A questionnaire survey based on the Japanese Registry of Muscular Dystrophy (Remudy)

2023-06-17

Abstract excerpt

<title>Abstract</title> <p>Background Little is known about the social difficulties, economic burden, and health care needs of adult Duchenne muscular dystrophy (DMD) patients in Japan, as well as the financial and physical stress experienced by their caregivers. This study aimed to clarify the social circumstances surrounding adult DMD patients and assess the degree of involvement of family members in their car...

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Literature Corpus work: df0f8242-4a5d-5603-b076-7b24cdfdcd33
DOI: 10.21203/rs.3.rs-2632486/v1

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