Household costs in the United States for accommodating functional impairments associated with Duchenne muscular dystrophy: results from a caregiver survey

Abstract excerpt

BACKGROUND: Individuals with Duchenne muscular dystrophy (DMD) often require mobility aids and accessible homes and vehicles. Because these accommodations are not typically reimbursed by insurance, costs largely fall upon patients' families. Additionally, families often incur high out-of-pocket costs for DMD-related health services and treatments. Research describing these expenses is important to understand the...

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