Article

Impact of Spinal Muscular Atrophy on Caregivers’ Daily Activities and Health-related Quality of Life

2020-03-10

Abstract excerpt

<title>Abstract</title> <p>Background Spinal muscular atrophy (SMA) is a genetic debilitating disease affecting approximately 10,000 individuals in the United States. Individuals with SMA frequently require caregiver support and care. Through a partnership with a large patient organization, we surveyed caregivers of individuals with SMA below 18 years of age to understand the impact of SMA on caregivers with resp...

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Literature Corpus work: d359c004-fe20-5af4-a274-79a9ca3bfdd9
DOI: 10.21203/rs.3.rs-16569/v1

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