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Article

Impact of Spinal Muscular Atrophy on Caregivers’ Daily Activities and Health-Related Quality of Life

2020-08-01

Abstract excerpt

<title>Abstract</title> <p><bold>Background:</bold>Spinal muscular atrophy (SMA) is a genetic debilitating disease affecting approximately 10,000 individuals in the United States. Individuals with SMA frequently require caregiver support and care. Through a partnership with Cure SMA, we surveyed caregivers of individuals with SMA <18 years of age to understand the impact of SMA on caregivers with respect to their...

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Literature Corpus work
f7afbeeb-ee87-5e89-aa8b-88e654c040f2
DOI
10.21203/rs.3.rs-46975/v1
Open publication

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Impact of Spinal Muscular Atrophy on Caregivers’ Daily Activities and Health-Related Quality of LifeDOI 10.21203/rs.3.rs-46975/v1
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