Article

NARRATING THE NEW PREDICTIVE GENETICS: ETHICS, ETHNOGRAPHY AND SCIENCE

2004-01-01

Abstract excerpt

This book explores the way changes in technology have altered the relationship between ethics and medicine. For some inherited diseases, new genetic testing technologies may provide much more accurate diagnostic and predictive information which raises important questions about consent, confidentiality and use of the information by family members and other third parties. What are the implications of this knowledge...

Topics

Open a Topic to create a Post that cites this publication.

Identifiers and source

Literature Corpus work: d1e79a4a-e2c6-5287-8db6-e36628d6ce21
DOI: 10.1017/cbo9780511584183

Open publication

Related research

Semantic proximity does not establish scientific evidence.

Click a neighbor to travelStep 1 · 12 closest

NARRATING THE NEW PREDICTIVE GENETICS: ETHICS, ETHNOGRAPHY AND SCIENCEDOI 10.1017/cbo9780511584183Read

Genetic testing and family entanglements.Semantic proximity Read

Autobiologies on YouTube: narratives of direct-to-consumer genetic testingSemantic proximity Read

Discovering the family history of Huntington disease (HD).Semantic proximity Read

Predictive genetic testing and the making of the pre-symptomatic person: Prognostic moralities amongst Huntington's-affected familiesSemantic proximity Read

Genetic Testing and the FamilySemantic proximity Read

Disclosing Genetic Test Results to Family MembersSemantic proximity Read

Psychological reactions to predictive genetic testing for Huntington's disease: A qualitative study.Semantic proximity Read

Genetic testing and mental health: the model of Huntington disease.Semantic proximity Read

Experiences of predictive genetic testing in inherited motor neuron disease: Findings from a qualitative interview studySemantic proximity Read

What's at stake? Genetic information from the perspective of people with epilepsy and their family members.Semantic proximity Read

How young people find out about their family history of Huntington's disease.Semantic proximity Read

Family, kinship, memory and temporality in the age of the new genetics.Semantic proximity Read