Article
Discovering the family history of Huntington disease (HD).
Journal of genetic counseling - 1 Apr 2006
Etchegary Holly
Abstract excerpt
A considerable body of research has explored both predictive genetic test decisions for Huntington disease (HD) and the impact of receiving a test result. Extant research reveals little, however, about how and when at risk persons first discover their family history of HD. Drawing upon 24 semi-structured interviews with at risk persons and their family members, this study explored initial discovery of HD in the...
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