Article
How young people find out about their family history of Huntington's disease.
Social science & medicine (1982) - 1 May 2009
Forrest Keenan Karen, van Teijlingen Edwin, McKee Lorna, Miedzybrodzka Zosia, Simpson Sheila A
Abstract excerpt
Family communication about adult-onset hereditary illness can be problematic, leaving some relatives inadequately informed or ignorant of their risk. Although studies have explored the barriers and facilitators in family communication about genetic risk, questions remain about when, what, how and indeed whether to tell relatives. The process of disclosure is also dependent upon the way in which genetic...
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