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Article

Storing paediatric genomic data for sequential interrogation across the lifespan

1 Jun 2023

Abstract excerpt

Genomic sequencing (GS) is increasingly used in paediatric medicine to aid in screening, research and treatment. Some health systems are trialling GS as a first-line test in newborn screening programmes. Questions about what to do with genomic data after it has been generated are becoming more pertinent. While other research has outlined the ethical reasons for storing deidentified genomic data to be used in...

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PMID: 37263770
DOI: 10.1136/jme-2022-108471

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