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Stakeholders’ Opinions on the Implementation of Pediatric Whole Exome Sequencing: Implications for Informed Consent

11 Jul 2013

Abstract excerpt

Advances in whole genome and whole exome sequencing (WGS/WES) technologies have led to increased availability in clinical settings. Currently, there are few guidelines relating to the process and content of informed consent for WGS/WES, nor to which results should be returned to families. To address this gap, we conducted focus groups to assess the views of professionals, parents, and adolescents for the future...

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Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

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PMID: 23846343
DOI: 10.1007/s10897-013-9626-y

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