“I’ve never been asked”: Community perspectives on involvement in genomics research

Abstract excerpt

<title>Abstract</title> <p>There is increasing global support from governments and other funding bodies for community involvement (CI) in research, alongside a scientific and moral imperative for responsible and ethical research practice. 90% of Australian patient-led organisations in rare diseases have clearly articulated research priorities, indicating a desire among people affected by disease to be involved in...

Topics

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• BRCA gene mutations in cancer
• Ethics in Clinical Research
• Genomics and Rare Diseases
• Race, Genetics, and Society

Identifiers and source

Literature Corpus work

8a72e247-20b6-5697-9b8c-4600e7ebe74b

DOI

10.21203/rs.3.rs-4339525/v1