Discover Community Create You

Loading publication...

Noodle always counts identifier-free feature events for service operation. With your permission, Google Analytics can also estimate audience and engagement. Search text, publication identifiers, cookies, IP addresses and browser fingerprints are never included in Noodle's first-party event counters.

Privacy details

Article

Disentangling Public Participation In Science and Biomedicine

31 Jan 2014

Abstract excerpt

BACKGROUND: This article provides a framework for disentangling the concept of participation, with emphasis on participation in genomic medicine. We have derived seven 'dimensions' of participation that are most frequently invoked in the extensive, heterogeneous literature on participation. To exemplify these dimensions, we use material from a database of 102 contemporary cases of participation, and focus here on...

Read the complete abstract on PubMed

Topics

Share this publication in a Topic to start or enrich a Post.

Share to Ethics in Clinical Research
Share to Genomics and Rare Diseases
Share to Race, Genetics, and Society

Methodology Data sources Editorial policy Privacy Delete account & data About Contact Helena Bioinformatics

Source

Identifiers

PMID: 24479693
DOI: 10.1186/gm525

Provenance

PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 24 Oct 2026.

Related research

Semantic proximity does not establish scientific evidence. Graph snapshot: 2026-09-29.

Research trail→

Click a neighbor to travelStep 1 · 12 closest

Disentangling Public Participation In Science and BiomedicinePMID 24479693Read ↗

Engaged genomic science produces better and fairer outcomes: an engagement framework for engaging and involving participants, patients and publics in genomics research and healthcare implementationSemantic proximity Read ↗

Public involvement in health genomics: the reality behind the policiesSemantic proximity Read ↗

A Framework for Promoting Diversity, Equity, and Inclusion in Genetics and Genomics ResearchSemantic proximity Read ↗

Involving patients and publics in medical and health care research studies: an exploratory survey on participant recruiting and representativeness from the perspective of study authorsSemantic proximity Read ↗

“I’ve never been asked”: Community perspectives on involvement in genomics researchSemantic proximity Read ↗

Engagement and social acceptance in genome editing for human benefit: Reflections on research and practice in a global contextSemantic proximity Read ↗

Incorporating and Evaluating Citizen Engagement in Health Research: a Scoping Review ProtocolSemantic proximity Read ↗

Multidisciplinary approach to community engagement in global public health researchSemantic proximity Read ↗

Addressing underrepresentation in genomics research through community engagementSemantic proximity Read ↗

Voting with their mice: personal genome testing and the "participatory turn" in disease research.Semantic proximity Read ↗

Risks, Benefits, Solidarity: A Framework for the Participation of Children in Genetic Biobank ResearchSemantic proximity Read ↗

Harvard Personal Genome Project: lessons from participatory public researchSemantic proximity Read ↗

⌁Select a neighboring publication to make it the new centre.