Article

Involving people affected by a rare condition in shaping future genomic research

2021-02-02

Abstract excerpt

<title>Abstract</title> <p><bold>Background </bold>There is evidence that involving potential participants and the public in co-designing research can improve the quality of the study design, recruitment and acceptability of the research, but appropriate methodologies for doing this are not always clear. In this study we co-designed a way of involving people affected by a rare genomic disease in shaping future ge...

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Literature Corpus work: 7afc4cbe-fcb2-5c4e-b0e0-d833c82f28a1
DOI: 10.21203/rs.3.rs-62242/v2

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