Discover Community Create You

Loading publication...

Noodle always counts identifier-free feature events for service operation. With your permission, Google Analytics can also estimate audience and engagement. Search text, publication identifiers, cookies, IP addresses and browser fingerprints are never included in Noodle's first-party event counters.

Privacy details

Article

From exclusion to engagement and enrolment: single institutional experience of recruiting Aboriginal and Torres Strait Islander peoples for a genomic sequencing study

19 Aug 2026

Abstract excerpt

Indigenous peoples remain under-represented in genomic research and clinical trials. This reflects historical exclusion, mistrust and health system barriers. In this article, we describe a single Australian institution's experience in improving engagement and enrolment of Aboriginal and Torres Strait Islander patients in a cancer genomic sequencing study. We reflect on challenges related to rapport, consent and...

Read the complete abstract on PubMed

Topics

Share this publication in a Topic to start or enrich a Post.

Share to BRCA gene mutations in cancer
Share to Ethics in Clinical Research
Share to Race, Genetics, and Society

Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

Source

Identifiers

PMID: 42618551
DOI: 10.1111/imj.70620

Provenance

PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 8 Sept 2026.

Related research

Semantic proximity does not establish scientific evidence.

Research trail→

Click a neighbor to travelStep 1 · 12 closest

From exclusion to engagement and enrolment: single institutional experience of recruiting Aboriginal and Torres Strait Islander peoples for a genomic sequencing studyPMID 42618551Read ↗

Investigating equity in access to Australian clinical genetic health services for Aboriginal and Torres Strait Islander peopleSemantic proximity Read ↗

Exploring the barriers preventing Indigenous Australians from accessing cancer genetic counselingSemantic proximity Read ↗

“This is My Boy’s Health! Talk Straight to Me!” Perspectives on Accessible and Culturally Safe Care Among Aboriginal and Torres Strait Islander Patients of Clinical Genetics ServicesSemantic proximity Read ↗

A framework for enhancing ethical genomic research with Indigenous communitiesSemantic proximity Read ↗

“I’ve never been asked”: Community perspectives on involvement in genomics researchSemantic proximity Read ↗

“There’s no representation”: A qualitative study of attitudes and motivations towards genomic research among South Asian AustraliansSemantic proximity Read ↗

Engaged genomic science produces better and fairer outcomes: an engagement framework for engaging and involving participants, patients and publics in genomics research and healthcare implementationSemantic proximity Read ↗

Involving people affected by a rare condition in shaping future genomic researchSemantic proximity Read ↗

Alaska Native genomic research: perspectives from Alaska Native leaders, federal staff, and biomedical researchersSemantic proximity Read ↗

Engaging populations underrepresented in research through novel approaches to consentSemantic proximity Read ↗

Community Engagement conduct for Genetics and Genomics Research: a qualitative study of the experiences and perspectives of researchers, REC members, and research communities, in UgandaSemantic proximity Read ↗

A Framework for Promoting Diversity, Equity, and Inclusion in Genetics and Genomics ResearchSemantic proximity Read ↗

⌁Select a neighboring publication to make it the new centre.